Zipperhead is an affectionate term for those of us who have had brain surgery to treat Chiari Malformation. For several days post surgery we walk around with very little hair, and many staples up the middle of the back of our head. It really did look like someone just zipped up the back of my head. Since I have also had a cranial cervical fusion as a follow up surgery, I have been a zipperhead two times.
Apr 19, 2011
Stormy days
The rain is coming down, thunder is rolling, lightning cracking, and the house is dark even though it is almost noon. Today I was going to clean, put away laundry and try to get my house a little less cluttered. As I sit here in pain, pressure rising in my head, I wonder how I will be able to accomplish anything today. All I want is to be a good mother, good wife, and good friend, but sometimes just thinking seems impossible.
It's hard to explain what its like to feel pain at all times. . . in every moment, good or bad, I am in pain. Once I wrote a poem about my lifelong companion and how it may lay in the corner quietly or it may scream so loud I cannot pay attention to anything else. My son and my husband are who really suffer. I am the one feeling it, but they have to watch me feel it, live with it, and pick up the slack for me when I just can't. I know it sounds funny, but as a mother I would rather endure it myself than watch the ones I love suffer. It is hard for me to imagine Logan having my medical issues, so lets pray that he doesn't:)
I have prayed for years to have a second baby... to be honest, its what I want more than anything else in the world. However, this is a reality check, can I really feel good about bringing another baby into this situation? I didn't have any diagnosis when Logan was born, but now I do. So, in the spirit of being honest with myself, what is the best choice for our family? I have 25 years if damage built up which created a lot of permanent damage, with education and prevention that wouldn't have happened. I could have lived a relatively normal life had we known when I was younger.
As I sit, listen to thunder, and watch the rain run down the window I wonder how I will accomplish the many things I would like to today, tomorrow and throughout my life. Its hard to let go of dreams because you are sick. . . sometimes we have to let go of something to be able to see the path hiding behind it.
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