Zipperhead is an affectionate term for those of us who have had brain surgery to treat Chiari Malformation. For several days post surgery we walk around with very little hair, and many staples up the middle of the back of our head. It really did look like someone just zipped up the back of my head. Since I have also had a cranial cervical fusion as a follow up surgery, I have been a zipperhead two times.
Aug 28, 2009
Limitations
One of the most frustrating parts is finding and accepting my limits. My body will only tolerate so much before it just decides to stop . . . my leg starts to hurt, my cranial pressure rises, my back aches, or a number of other possibilities. I want to do more, I want to go back to work, or be PTO president - but I can't guarantee from one day to the next I will feel well enough to take on the task at hand. Do you know how disappointing that is for me? In my head I can do it all, but my body just doesn't agree all the time.
This was not the plan. I was going to be a great mother, great massage therapist, and amazing wife - then things changed, life happened and the plan fell apart. I know - "the best plans often do", but when its your plan that phrase is NOT comforting.
So, all I can do is wake up each morning and try. I choose to enjoy my life, even though I have plenty of excuses to never leave my bed. I am in pain every second of every day, so some days I have to give in and just stop. Finding and excepting my limitations is an ongoing battle, but most days I win!
Subscribe to:
Post Comments (Atom)
Why, hello, friend! :-) Just found your blog when I saw you were a follower of ours. I'm off to bed now but I'll be back to get up to date. WE NEED TO GET TOGETHER!!!!!!!!!!!!!
ReplyDelete