Not so good.

Over the past year I have slowly been having increased pain, nausea, vomiting, and some other annoying, daily symptoms. There is a pseudomeningicele, pocket of spinal fluid, built up between the back of my brain and my skull. This pocket is due to having multiple surgeries on the area, and the area not healing in exactly the same shape as before the surgeries. Unfortunately, my surgeon in NY is not being exactly helpful at this time, and local doc wants to leave it alone, but "treat the symptoms". This means injections, meds, daily PT, possibly a spinal cord stimulator and many more fun possibilities!
Frankly, I'm tired of being sick and tired. I am tired of injections, needles, and tests. I just want to take care of my son, my husband and our home - thats all, not too much to ask is it? At this point, it might be. I am back to limited functioning - daily life tasks are getting harder and harder for me to complete. It is hard for me to want to eat because I don't know what I will actually digest or what will be left for me to puke in the morning. This happens from time to time, my symptoms increase and life sucks for a little while. I will either adjust or it will get better. For now - I have a new doctor I am going to see about injections, and any other ideas he may have. My NY surgeons are currently under investigation (which I will comment on more later) and I'm not sure what that means for me. I am thinking about finding a another Chairi specialist for a second opinion. There is a lot for me to think about right now, and being in pain takes up so much of my energy these days.
Through all this I am constantly aware that this could all be worse... I am able to stand on my own two feet everyday, I am able to be part of my son"s life everyday, I am loved by my husband, my family, and my friends. When I remember all the good things around me it is much easier to make it through the day with a smile.