Aug 6, 2012

My little scholar


Logan is getting ready to start fourth grade. He will be ten years old in November, he is thin but tall for his age, he is extraordinarily smart and can interact with any adult, but he is still an extremely silly nine year old boy.

This past school year he was placed the 'high ability' program. This meant being in a mixed third/fourth grade REACH classroom following a fourth grade curriculum, with fourth grade field trips, standards, and specials. We were asked to teach him multiplication/division prior to the first day of third grade and there was some differentiation in reading, math, and spelling. Logan made straight A's, tested very well, and rarely had any homework, all while he was sick three months of the last school year. Late in the school year they announced that the high ability program was being revised. They are switching from a 'classroom model' to a 'cluster model'. The incoming fifth/sixth graders will still be in a 'classroom model' mixed class for one more year, but the incoming third/fourth graders will move to the 'cluster model' and be grouped in classrooms with their age group peers. The problem with this is the fourth graders are basicly repeat the same fourth grade curriculum, with a few changes in materials and a few additional enrichment projects. For many of the students this will be fine, probably a good idea to review concepts they had difficulty with last year, but for Logan this far from appropriate. I am not one of those parents that just thinks my child is the best - Logan really, truly is amazingly smart. The Asst. Principle of Logan's school put it this way, "Logan is like having a special education student on the other end of the spectrum." We are currently in the process of having him assessed for giftedness in hopes it will help us to know how to meet his needs emotionally and academically.

I have spoken with the school a few times now, but there is no clear plan for a kid like Logan. No way to guarantee he will be challenged and stimulated in a classroom that is following the same standards/curriculum as last year. Our options are limited now that school starts in a week and we don't have the personal funds for private schools. At this time we are planning on enrolling him in one of the state's two public virtual schools for fourth grade, with hopes of returning to 'brick & mortar" school next year. I worry about whether or not we are making the right decision for Logan's future. I wish I could look into the future and see that our choices are going to give him all he needs to grow and learn. We cannot be afraid of trying new things - who knows, this may turn out to be the perfect learning situation for Logan and if its not, we can always go back to the local, traditional public school.

If you have any ideas, tips, or recommendations please leave me a comment or send me an email. I hope you're having a great day! Go outside, enjoy the sunshine, and all the beauty around in your life. I'll post again soon.


Jul 30, 2012

Life lessons


I've been thinking a lot about Logan's upcoming birthday . . . ten years old. First of all, I cannot believe my little man is almost ten years old already! Then, I started asking myself if I have taught him all the things he needs to know by this point in his life? He knows all the basics that any ten year old should know: brush your teeth at least twice a day, tie your shoes when they come untied, eat well, do your homework, respect others, and try to make good choices. I know he is a very intelligent boy and he will be an amazing adult, but as his momma there is more I want to teach him. . .

Treat others as you would like to be treated - this includes living beings,
Always save some of your income - you never know when a storm is coming,
Read daily,
Laugh big,
Pet and play with your dog every single day,
Live well,
Take time to appreciate your life - moments big and small,
See the beauty in your surroundings,
This family will always have your back and love you no matter what,
Work hard, then play hard,
Don't ever be afraid of a challenge,
Don't ever be afraid to fail,
Treat yourself,
Treat your family with love, respect, and kindness,
Be positive,
Love with all you have,
Respect yourself and take care of your body - you're the only you we have,
And never, ever forget your momma loves you more than words can say

I would also like for him to learn Spanish and a musical instrument, but that is a slightly different kind of lesson than the list above. I'm sure there is more, but that is off the top of my head.

I know Logan can do amazing things in life, especially with the right guidance - I just hope we are giving him the best start he could have. This is something I think about daily, but in the end all I can do is hope we're making the best choices for his future.
I know I write a lot about my motherhood anxieties, but this is my "full time job". That's all for today. As always, I hope you're having a wonderful day and take the time to see the good in your life.

Jul 27, 2012

2012



If I had to sum up this year so far in one word it would be: challenging. . .
Logan was sick off and on from October to January, then consistently from January to April. He missed almost three months of school before it was over, was very sick, and had me sick with worry. After a trip to Riley Hospital and many painful days, Logan's colon started functioning again, he regained his strength and went back to school! He was able to maintain straight A's on his report cards and score 100% on Indiana's I-READ3 mandated test. In March the principal called and asked that I bring him in for testing, then he could come home as soon as he was done. . . Logan still scored in the 'pass plus' range for both math and language on the third grade I-STEP testing. Thankfully, he is doing well now. He returned to school full time the first week of April and is now off all meds. The silver lining to this big, black cloud is that he was scanned to look for Chiari Malformation and it was NEGATIVE!!

Around the same time my neck started having pain, clicking, and cracking.  My local doctors feel surgery is needed do to problems with my cranial cervical fusion.  My next post will have more details, but surgery number five is being scheduled soon.

There have been several other bumps in the road this year, but these are the two biggies.   A few good things have happened too. . . My sister-in-law married a great man, Logan/Caleb/mother-in-law/father-in-law and I  went to Chicago for spring break, and Caleb/I celebrated our tenth anniversary.

I will try to be a good blogger and post more frequently;)  Between trying to keep up with Logan, enjoy summer, organize my messy house, and spend some time with family it has been a busy summer.  Oh, and there is the matter of the little surgery I'm trying to schedule. 

As usual, I hope you are doing well and taking the time to enjoy the little things in life! 


Jul 10, 2012

Really real


In the past two months my neck/base of my skull have been awful.  I woke up one morning, rolled over in bed, and my neck started clicking, popping, shifting, cracking, and feeling like someone kicked it.  I called my primary care physician for an xray order to see if any hardware was broken.  Then, we contacted my local orthopedic surgeon and after a CAT scan my fears were confirmed - I need a revision on my cranial cervical fusion.  We tried injections with nerve blocks and steroids with no positive effects.  I restarted physical therapy/cranial-sacral therapy, but this is beyond the help of all these modalities.  Evidently my NY surgeons left the two titanium fusion rods two levels longer than the vertebrae they secured the rods to with screws.  Now, six years later, the bottom of the rods are to close to my C-6/C-7 restricting motion, rubbing the vertebrae, and bone is trying to form between vertebrae and the rods - in other words, the clicking and popping noises in my neck are metal and bone hitting each other.  To top that off, my left C-1 screw is protruding out the back of my vertebrae into "vessels".  This seems to be causing odd shifting sensations, "creeky" hinge noises, cracking, pain, and squirty/bubbly sounds along the occipital ridge/base of my skull.

In the past few days I've realized my life is about to get really real - again.  People walk through life everyday without real problems, true stresses, or issues that will truly effect their life long term.  So many of us create the majority of our stress and anxieties by making poor choices, over reacting, being negative, or treating others badly.  Sometimes its hard for me to have sympathy for people when they could easily alter there behavior and fix the problem... some of us aren't so lucky.  It is hard to describe what it feels like before major surgery when you've already had several and know you'll have more in the future.  The anticipation of the upcoming procedure mixed with the memories of painful past experiences leaves me anxious, stressed, and thinking about how long I can ignore the whole thing!  I'm in the process of deciding who will do the surgery and where they will do it… Do I need to go back to NY?  Did my NY doctors make a mistake when they installed my cranial cervical fusion hardware in 2006?  Is any of my "residual pain" actually do to poor screw placement or rod length?  Can my amazing, local orthopedic surgeon do the surgery here in IN safely?  Should I get another opinion from another Chiari specialist?  If so, who - an Indy doc, the renowned specialist in CO, or a doc in Chicago well known for his Chiari work?
Its just gotten so complicated.  Three doctors agree, so far, that this is necessary surgery. They also agree it will not be an easy procedure for me.  My surgeon will have to remove the left C-1 screw and right C-5 screw, plus shorten my two titanium rods by two vertebral levels.  All of which is lies snuggly under layers of muscle, scar tissue, arthritis and a solid fusion. . . Did I mention I also have a large area of cerebral spinal built up at the base of my skull?  And that my connective tissue disorder makes healing more difficult?  Like I said, its gotten very complicated.
The more I talk about it or think about it the more real it seems.  I'm scared. I'm sad because this may rule out any chance of a baby.  I guess all I can do today is focus on the current task and worry about tomorrow, tomorrow.  This surgery is inevitable, but I'm not in a hurry.  My family and doctors seem to disagree, so we'll see how long they let me get away with ignoring the situation and concentrating on Logan/I having a great summer!
I'll update once I have more information- I'm waiting to hear back from my NY surgeons after they view my latest CAT scans.  Any prayers or good thoughts you can send my way would be appreciated.  Thank you and I hope you're having a good day! 


Feb 7, 2012

Has it really been this long?



Well, it seems my blogging runs in cycles with my pain and stress level. It occurred to me this morning that I haven't posted in a while. . . more like four months!!! I'm going to play a little game of catch up, so that you can understand why I have been so neglectful.

1. My last post was about my dear, sweet Ava and her first birthday. I am VERY excited to announce Ava's mommy/daddy are pregnant and due in July! Please, send the Bryan family lots of good thoughts, love, and prayers.

2. In early October I started having some rather annoying pain in my low back/abdomen. I went to my doctor, who ordered some tests and they found hemoragic cysts on my left ovary - note the cysts were on my left side, but the pain is on the right. The right sided pain was chalked up to free floating fluid from the cysts, and I was treated for ovarian cysts. A few weeks later the exact same pain, on my right side, in the exact same place was back and it was worse than ever. I went back in for a abdominal CT scan and this time there was a kidney stone on the right, and my right lung was infiltrated with pneumonia. Well, this explains the right sided back/abdominal pain. In December I was re-scanned and the kidney stone hadn't moved, but my lung was clear. Since then I have been having a lot of pain and spasming with this kidney stone. I have seen a urologist, but she isn't convinced the primary cause of the pain is my kidney stone. She believes there is a problem in my colon/intestines and it is causing inflammation which is then effecting my kidney and the small stone inside. I am scheduled to see a gastroenterologist later this month - I've been to many over the years, so I'm not sure what they're going to do, but it probably will involve some sort of scope and won't be any fun. I know I have gastroparesis due to vagus nerve damage, which is why I am not always able to digest food, but we will see what this new doc has to say.

3. Logan played his first season of basketball. We live in Indiana and around here kid's basketball programs start as young as 4 yrs. old. My husband/I have tried to expose Logan to several sports and at some point he will choose the what he likes to play. Out of all the sports we've tried - football, soccer, t-ball, swimming - basketball seems to come easiest to him. Now if I could just figure out how to make him more aggressive/competitive on the court he'd be good little baller. Logan really enjoyed the season, he learned a little about the sport, made some new friends, and had a great time. . . even though his team was 2-12.

4. The holidays were rather uneventful. No big fights at family get togethers, no major drama - just good family time, a few laughs, and Logan was spoiled rotten. As usual I sent out photocards and made some goodies to give away. A few of my crafts took longer that expected, but most of it worked out in the end.

5. My gorgeous little man, Logan, has been sick for weeks now. It all started in November when he was put on anti-biotics to treat bronchitis and it constipated him almost immediately. By Christmas we thought he was back on track. Three weeks ago I got a call from the school to come pick up Logan because he wasn't feeling well. He was home one day and then we sent him back. Later that day I brought him home early again, we end up finding out he has strep throat and he goes back on anti-biotics. After ten days, he is no better and had the strep rash upgrading him from strep to scarlet fever, so we start him on a stronger anti-biotic. Now this whole time Logan does not have a fever, is complaining of headache/abdominal pain, and his tonsils/lymph nodes are swollen, but he doesn't complain about his throat. Five days into the stronger anti-biotic he doesn't seem to be getting better, so I take him in for a mono test and abdominal x-ray. The mono test is negative, but the x-ray shows severe constipation and his entire large intestine is impacted. He is automatically put on a laxative and stool softener. Three days later, this past Wednesday,he spiked a fever, so he had an abdominal CT scan to make sure the appendix isn't inflamed and look for infection - luckily, it came back clean. So, Thursday he was put on a "super-laxative" and we were told he would be cleaned out within 48 hours. It is now Tuesday of the following week, Logan is still miserable with belly pain and he has had maybe four good sized bowel movements, but he's no where near cleaned out. Each morning he is waking up in pain, I find him moaning in fetal position begging me not to make him move. Its so much easier being the patient. He missed twelve days of school, and this is his second day back. I feel horrible forcing him to go to school when he is so uncomfortable, but we are doing all we can to get him feeling good again. Logan is going to a pediatric gastro next week - I just pray we can get some answers and help.

6. My sister-in-law, Emily, got married! Logan was the ring barer, Caleb walked their momma down the isle and I got to take LOTS if pictures. We all had lots of fun, Emily was beautiful, and I'm no longer the only "in-law" in the family!

I think that covers the basics. I will post more details later, and try to keep you all updated on Logan's belly. The past few weeks and months have been hard for me, but I'll try to keep posting regularly. I'm trying to stay positive, look at the bright side, and just keeping moving.